We were so delighted to receive the very kind donation from the Trustees of the James Beattie Charitable Trust.
Spina bifida and hydrocephalus (SBH) are complex conditions that affect mobility, learning and health. The charity Shine provides free membership and specialist support, pre-birth and beyond, for anyone living with SBH, their families and professional care network. We support 35 members in Wolverhampton, and are always welcoming new members, including families with newborns.
Families can feel overwhelmed by a diagnosis, and we provide skilled guidance and reassurance at home, hospital and clinic, arrange peer support groups and family events, and help parents to access disability benefits and equipment for their child.
Learning and development can be very challenging for a child with complex disabilities, compounded by missing so much at school through health complications. We provide resources and training for health professionals, and reach out to local schools, so that children with spina bifida and hydrocephalus feel included and have a strong start that sets them up in life.
Debra Chand, Trusts Development Officer,
|42 Park Road, Peterborough, Cambs, PE1 2UQ